An urgent question was granted today on our ability to share research and provide treatments for rare diseases. I used my question to press upon the minister if we would still be part of a European wide institute designed for tackling rare diseases following a Brexit on 31 October 2019. The UK is a member of this organisation, which is backed by €1,000,000.
I’m sad to say that the minister could not guarantee we would retain our access to this vital fund and service. Instead stating that any future agreement would decide our access. I cannot see why the UK Government would want to see us lose access to this important organisation that tackles some of the most horrific diseases.