Local people affected by motor neurone disease (MND) recently met with me to raise awareness of the immense financial hardship families can face when trying to cope with this rapidly progressing, fatal disease.
Research commissioned by the Motor Neurone Disease (MND) Association found families struggling with the financial impact of MND – some are wiping out their savings to get support, or going without because they can’t afford it.
The amounts people have to spend can vary hugely but on average, life with MND is costing an extra £12,000 a year, before loss of earnings. Those living with children and those of working age are likely to incur even higher costs. Read more “Meeting local MND Branch”