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By David Hanson MP / Latest News / 0 Comments

Health Questions: Rare Diseases

Yesterday, I asked the Minister for Health about the concerns held by the organisation ‘Same but Different’, based in Flintshire, about the number challenges facing people with rare diseases. In particular they raised with me the key issue of the support available, particularly for parents with children with rare diseases at the time of diagnosis.

I hope the Government will work with organisations to ensure that there is no gap in the care provided at all stages of treatment.